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Symptoms of cfs helped by cannabis
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Lilli
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Joined: 12 Dec 2003
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PostPosted: Tue Feb 24, 2004 12:31 am    Post subject: Symptoms of cfs helped by cannabis Reply with quote

The real physical effects of CFS/ME
I have had this now for 10 years its been a struggle every step of the way. Every day is differant and the severity of symptoms lessens or heightens continusly. Cannabis and opiod painkillers helps me tremendously for these

Having CFS/ME is in reality like having bits of Multiple Sclerosis, AIDS, Alzheimer's, the flu, Arthritis and Epilepsy all thrown together at once, with some extra stuff thrown in that’s all its own.

It can leave you unable to read even a few lines of text, write, watch TV, or have the radio on. You can be unable to speak, or to understand speech in any way, and this is every bit as terrifying as you can imagine. Your throat, glands and muscles can all hurt beyond the reach of medication as you go in and out of fevers, unable to sit up for more than a few minutes. Your heart can beat erratically at random moments, sometimes for hours. You can have difficulty breathing or breathing can stop altogether. The room can spin with constant vertigo and you can become allergic or sensitive to almost everything. You can have seizures or experience paralysis. You can lie awake with insomnia all night, completely exhausted but unable to sleep.

Other symptoms include (in no particular order): papules (elevated red bumps) and vesicles (which resemble blisters) in the back of the throat and lining of the cheeks, Neurally Mediated Hypotension, recurrent flu-like illness, low blood pressure, blind spots in vision, vomiting, fainting or blackouts, sleep disturbance, irritability, paresthesias (abnormal sensations in peripheral nerves), word-finding difficulty, blurred vision, dyslexia, nausea, severe muscle and jpint pain, memory problems, extreme sensitivity to light, noise and movement, severe exercise intolerance, tinnitus, inability to concentrate, spatial disorientation, difficulty swallowing, alcohol intolerance, thyroid and adrenal dysfunction, cough, constant low temperature, feeling hot or cold, headaches, hypoglycemia, tremor, involuntary movements, severe muscle weakness and nystagmus (involuntary rolling of the eyes). (Berne p. 316 - 320)

There are also many more symptoms but I’m trying to be brief. As you can see not only does it affect what seems like just about everything physically but there are extensive neurological problems and injuries as well. With most illnesses it’s one or the other but with CFS/ME you can be unable to recognize the face of your family sitting right in front of you and struggle to breathe all at the same time. One day my grandson came in an i didnt recognise him an thought to myself who is this boy? That has only happened to me once.

"Dr Dan Peterson, one of the doctors who delineated a tragic CFIDS cluster outbreak in Incline Village, Nevada (often considered the epicenter of the disease), employed a protocol called the Medical Outcome Study to systematically evaluate the level of suffering in a group of CFIDS patients. He and his colleagues measured people with CFIDS against a control group and against patients with various ailments. When he presented his findings, Peterson revealed the astonishing fact that no other set of patients had measured so poorly. CFIDS patients experienced greater "functional severity" than the studied patients with heart disease, virtually all types of cancer, and all other chronic illnesses. An unrelated study compared the quality of life of people with various illnesses, including patients undergoing chemotherapy or hemodialysis, as well as those with HIV, liver transplants, coronary artery disease, and other ailments, and again found that CFIDS patients scored the lowest. "In other words", said Dr Leonard Jason in a radio interview, "this disease, this syndrome, is actually more debilitating than just about any other medical problem in the world." Nevertheless, most accounts of the illness have simply shortened its name to the flip and damaging misnomer "chronic fatigue" as if CFIDS is a mild inconvenience." (Munson, P. p. 4)

Fatigue is certainly a symptom of CFS/ME but it is merely one of many. Fatigue is also not really the right word. The fatigue felt by people with CFS/ME bears no relation to any sort of fatigue that anyone without personal experience of this illness has ever felt at any time in their lives. It is not a signal to the body to rest as normal fatigue is, but rather it is the result of bodily processes going haywire, organs malfunctioning and a body struggling to function despite being seriously compromised and damaged. It’s not just more severe than normal fatigue, it’s a completely different problem altogether. Mark Lovelass MD, an infectious disease specialist and head of the AIDS and CFS Clinic at Oregon Health Sciences University, testified at a 1995 congressional briefing, that a CFS patient, "feels effectively the same every day as an AIDS patient feels two months before death." (Berne p. 25)

Unforunatly I suffer with Glaucoma, Diabetes, Conjestive Heart Failure and Advanced lung disease (making the bottom 2 portions of my lungs worthless.) Menapausal symptoms Arthritis and sleep apnea.
Each and everyone of these disease's I find relief in with cannabis. It isnt in my head , there have been studies for proof.
It is time passed time sick people stop going to jail for medicine.
Your loving sister ~Lilli~


Last edited by Lilli on Tue Feb 24, 2004 10:06 am; edited 1 time in total
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Rev. Chazman
Cannabis Sacrament Minister
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PostPosted: Tue Feb 24, 2004 1:09 am    Post subject: Reply with quote

Well said sister. A true life testimonial that we can all learn from. I pray that the good conscience of the government soon recognizes the need for sanity where medical cannabis is concerned. I also pray God give you the strength you need to continue your daily struggle.

Peace
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I praise good thoughts, good words, and good deeds and those that are to be thought, spoken, and done. I do accept all good thoughts, good words, and good deeds. I do renounce all evil thoughts, evil words, and evil deeds. ---Avesta: Yasna
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roney
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PostPosted: Tue Feb 24, 2004 9:46 am    Post subject: Reply with quote

God be with you Lilli.

Love

roney
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Lilli
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PostPosted: Tue Feb 24, 2004 9:57 am    Post subject: Reply with quote

Thank you for your encouraging words brothers and sisters.
You know ... I know God could heal me... But I accept with love that this is the way he wants me to be now. Maybe I am a better teacher in this condition. I lean not upon my own understanding. Whatever the reason I accept it with love from God. It does allow me to set here for hours upon hours reasearching teaching preaching and ministering. I am to weak to do much or go anywhere. Our good brother Lorcan said to me today "Lilli you are blessed even to the degree and quantity of your symptoms and I know this and am thankful. I am blessed among women I feel Jehovahs annoiting upon me.
When the Holy Spirit was upon me when I first painted the murals His annoiting made me so high. the kids often thought i was drunk and would smell my breath to see. I even would turn down the jpint at that time for his high so high i thought the jpint might bring me down. Lol There truly is no higher high then when his spirit is upon you.
Much love and respect your sista ~Lilli~


Last edited by Lilli on Wed Mar 31, 2004 1:50 pm; edited 2 times in total
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Lilli
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PostPosted: Tue Feb 24, 2004 11:27 am    Post subject: His Eye Is On the Sparrow Reply with quote

Why should I feel discouraged
Why should the shadows come
Why should my heart feel lonely
And long for heaven and home?
When jesus is my portion
My constant friend
Is he
His eye is on the sparrow
I know he watches me
His eye is on the sparrow
I know he watches me

I sing because I’m happy
I sing because I’m free
His eye is on the sparrow
I know he watches me
His eye, his eye is on the sparrow
I know he watches
I know he watches
I know he watches me

I sing because I’m happy
I sing because I’m free
His eye is on the sparrow
I know, I know, I know he watches over
He watches over me
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Echo
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Location: England

PostPosted: Tue Feb 24, 2004 12:33 pm    Post subject: Reply with quote

When cronic fatigue syndrome first emerged as an illness in itself (was it 15 years ago or so?) was first thought of as an immaginary illness. Nothing could be more far from the truth. Sadly it's very real indeed. But I heard of patients getting better or even having complete remission after a more or less long period of time.

I wish you to get better Lilli, in the meantime, thank God we have our sacrament Cool

Hugs,

Echo

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The gods thought otherwise.
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Lilli
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PostPosted: Tue Feb 24, 2004 6:56 pm    Post subject: Reply with quote

ty "To love and be loved is to feel the sun from both sides."


— David Viscott, M.D., psychiatrist and author
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viper
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Location: Merseyside, U.K.

PostPosted: Fri Feb 27, 2004 6:21 pm    Post subject: Reply with quote

I to have M.E./C.F.S.

Sister Lili, you are not alone.

Your description was very accurate indeed.

Do you have an osteopath ? If not get one.

Take regular massages too & take a food sensitivity test.

I've been a lot better as a result of diet change.
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Lilli
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PostPosted: Fri Feb 27, 2004 8:33 pm    Post subject: Reply with quote

TY , Yes I have an osteopath and a whole smorgesboard of drs. Heart specialists Pulminary specialists.Pain specialists. I am totaly dependent on my husband and family, I havnt been able to wash or brush my own hair for years now. Its like I just get to worn out.And then have breathing probs. Sometimes its like they are my pit crew. Mornings are my worst because it takes me so long to get my lungs cleared. Even starting out with a breathing treatment.It sometimes takes a cpl hours to accomplish. I get totaly freaked out if I wake up and am having probs an no ones here its scary.
I take prozac for depression but I cant say I am not depressed because I am. cfs sufferers have a high rate of suicide. I felt that way too at the initail onset 10 yrs ago but of course I was also grieving my sons suicide.
My husbands massaging my shoulders an neck as I type. Hes very sweet to me. Helps me bathe and dress.I hope you have a good team of helpers. I can set here for hours an be comfortable as long as my vision holds out. It fades in an out.
The thing thats scarying me now is when I loose lucidity and cant talk right and feel real stupid in my head. The other day I could hardly hold a spoon to feed myself soup. Some days I can even go to work with my husband and help him, each day is differant. Its a very frustrating illness.
Topped with my other illness. I just try an take it one day at a time. Even if I have to take that day moment by moment. Even my ex husband comes over to be of help when he can and thats sweet.
Well Im rambling so Ill stop. Take care Viper. btw what are you on? I take cannabis for all my diseases.All have proved thru tests to help.
Im on oxycontin (pain) prozac(depression) nurontin carbodopa/dopamine (seizures and parkinson like symptoms) lasix, tricor (heart) zanaflex (musclespasm)
avandemet an insulin (diabetes) guaifesen, benzonatate, albutrol , flovent and advent(for breathing an coughing) xanax ( anxiety) and echinecia (snakeroot) to build my immune systam. Allegra d( allergys) whew I am on some drugs man. peace ~Lilli~
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TrueProCannabis420
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PostPosted: Fri Feb 27, 2004 10:52 pm    Post subject: Reply with quote

BLESS YOU SIS! We all the members of thc ministry are VERY HAPPY and HAVE Pride of you being a great member and teacher and a mother to all of us. Thank you, LILLI! Smile
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Kate
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Joined: 31 Jan 2004
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Location: boynton beach, florida

PostPosted: Sat Feb 28, 2004 12:27 am    Post subject: Reply with quote

---lilli,
thank you so much for posting this!
it has given me something else to ask my doctor if he tested me
for this!
about 18months ago, i suffered from collapsed lungs--drs. couldn't
figure out what caused it. even though i went thru extentive testing,
(1st week w/tubes in lungs, then the next 2 weeks were tests 2-6 times a day!)
but there are quite a few symptoms that are listed that i do suffer
from or do occur every so often.
i have a hard time breathing @ times also.
the lung spec. told me to quit smoking cigs and to start smoking pot.
told him that the butts are in the trash-but the bud is @ home waiting!

i am so sorry to learn that your symptoms are so numberous
and severe! and so glad that you do have the strength to do the
things you do!

prayers & blessings'
---kate
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Lilli
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PostPosted: Sat Feb 28, 2004 12:35 am    Post subject: Reply with quote

There are 2 differant kinds of mono/epstein barr/chronic fatigue.(all names for the same condition)
one is accute and the other chronic. I had them both at onset They can only test ya for the chronic kind by getting artery blood make him test ya for both. Wishing an praying the best for you Kate. Gods love ~Lilli~


Last edited by Lilli on Sat Feb 28, 2004 1:14 am; edited 1 time in total
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machete
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PostPosted: Sat Feb 28, 2004 1:10 am    Post subject: Reply with quote

Hey Lilli

hugs always make me feel good, and listening to you always make me feel strong, so there goes a

A GREAT BIG BEAR HUG FOR YOU

lick

(how come there are emoticons in sex positions but there are no huging ones? hahahahaha)


Peace.
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Lilli
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PostPosted: Sat Feb 28, 2004 1:13 am    Post subject: Reply with quote



Last edited by Lilli on Sun Feb 29, 2004 3:26 am; edited 1 time in total
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PotSmokingFiend
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PostPosted: Sat Feb 28, 2004 1:53 am    Post subject: Reply with quote

i feel really sorry for u lilli. i can only hope that things get better for u and that mediw and smoking a few dozen tokie and peacepipe and bong s a day makes better. ones thing for sure you're one cool and groovey lady.

rock on sister and best wishes for u and all the family )))))))BIG HUG(((((((
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